Monday, August 7, 2017


Had a better night last night.  Got up at midnight and again at 4:00am to ingest some water, protein, and pain meds through tube.  Slept well till 8:00 this morning.

Went to treatment and saw the Oncologist afterwards.  He asked if I had gotten the Cortisone cream he ordered for me.  I said I did not know of any scripts that were waiting for me.  I asked if he sent it to Walmart on the westside and he said yes.  He said he also gave me a paper script.  I told him I never got a paper script for Cortisone.  I have been using over the counter Cortisone.  He insisted that he gave me a script.  So he left the room and came back with a paper script for the medication.  He said that it was stronger than the OTC medication.  I think he is confusing me with someone else.  I never asked for anything for my neck.  I told him on several occasions that I had many lotions for my neck and that it was not a problem. 

Got home and noticed I had a call on my cell from CVS pharmacy telling me that my prescription was ready.  What prescription?  Is this the one that he said he called in to Walmart pharmacy?

Here we go again.

He also asked about my pain meds.  I explained that I was taking 1/3 of a dose 3 to 4 times a day.  He cautioned that I would not be able to get another bottle of the Hydrocodone once this one was empty.  Why?  I told him that my ENT doctor was able to get me two bottles of it when I had my tonsillectomy.  He said we would find a loop hole and try to get more if needed.  This was not something I wanted to hear.  I read about patients getting several pain meds at the same time due to the severity of the pain towards the end of treatment.  This is unbelievable.

I had to cut my own grass today as the guy I hired never showed up.  He said he would be back in 2 weeks.  That was 18 days ago.  I will continue to cut it myself and save the money.  He didn't cut it low to the ground anyway, and the next day it looked like it had not been cut at all.

Things just don't run smoothly for me.  It's always something.

Today I ingested 850 calories, 101 grams of protein, and 16 ounces of water.  Just not enough water.  Need 64 ounces a day.

When they weighed me today I expected to see more weight loss but I'm still 162.  This is surprising to me and to the doctor.